ALS of Utica - Agency
9169 River Road
Marcy, NY
Provides individuals with ALS (Amyotrophic Lateral Sclerosis) with services through the Estate Planning Law Center to cover Estate Planning fees. These service are to help patients get their affairs in order and to be assessed for Medicaid coverage. Offers a Caregiver's Support Group for those that care for ALS patients.
Muscular Dystrophy Association (MDA) - Agency
161 North Clark
Suite 3550
Chicago, IL
Provides information and support, clinical research, and medical equipment for individuals with muscular dystrophy, ALS, and other muscle-debilitating diseases. Offers summer camps for children, a peer support network and equipment resources.
Sickle Cell Disease Association of America - Agency
7240 Parkway Drive
Suite 180
Hanover, MD
Provides support and information services for Sickle Cell patients along with their families and friends, usually in partnership with local community-based organizations.